Governance & Ethics

Clear governance, bounded ethics, and accountable program design.

Luma Direct is built to be trustworthy by design. Our governance model prioritizes safety, transparency, nonprofit accountability, and a clear boundary between education and medical care.

Advisory Board

We're forming an advisory board. These are the roles we're recruiting:

Endocrinologist

Will review content for clinical accuracy and current diabetes care standards.

Diabetes Educator

Will help keep content clear and useful for families.

HR Benefits Leader

Will bring an employer and benefits perspective.

Type 1 diabetes parent

Will bring a family's lived experience to the program.

Ethics Principles

Safety Over Scale

We prioritize participant safety and quality outcomes over rapid growth or market expansion.

Education Over Advice

We provide educational information and explanations, never medical advice or recommendations.

Trust Over Engagement

We build trust through transparency and clarity, not through engagement metrics or retention tricks.

Nonprofit Structure

501(c)(3) Status

Luma Direct is a 501(c)(3) nonprofit organization with a national mission to support families newly navigating type 1 diabetes through education and navigation support.

EIN: 41-4875233 · Verify with the IRS

Our tax-exempt status reflects our commitment to public benefit and ensures that donations are used for program delivery and organizational sustainability. Contributions are tax-deductible to the extent allowed by law.

Founder & Leadership

Compensation & Governance

Our founder serves as Executive Director and leads program and technology delivery. Our pay policy:

The founder is currently unpaid.
No profits go to anyone. Luma Direct is a nonprofit.
Any future pay must be reasonable, approved by the board of directors, and documented.

This keeps leadership focused on a sustainable, high-quality program, not personal profit.

AI & Technology Ethics

Responsible AI Use

If we turn on AI tools, we'll use them only within set educational steps, never in place of human judgment or clinical care.

Any AI feature will show clear notices, and you can always reach a person at support@lumadirect.org.

Data Privacy

Luma Direct isn't a healthcare provider or a HIPAA covered entity. We collect basic family details you choose to share, like a diagnosis date, an age range, and care-team contacts, to guide you through the program. We don't ask for medical records, lab results, glucose readings, or insulin doses, and our tools are built to remove them if they're typed in.

Our AI tools are off today. If we turn them on, we won't store the raw text of conversations.

Transparency

If we turn on AI tools, we'll tell you when you're using them and what they can't do.

Compliance & Accountability

Clear separation between education and medical care
Medical disclaimers on all public pages
Escalation paths for participants who need medical support
Our tax-exempt status is public on the IRS Tax Exempt Organization Search. We'll link our annual IRS filing here once it's filed.